Filter patients by cancer staging captured in an Observation

Filter patients by cancer diagnosis (Condition.code)

Allows filtering patients by County (address.state)

Filter patients by date of birth

Allows filtering patients by Education Level extension

Allows filtering patients by Facility UPI

Filter patients by biological sex

Filter patients by Kenyan National ID

Allows filtering patients by Occupation extension

Allows filtering patients by SHA ID

Filter patients by sub-county (address.district)

A structured CarePlan profile for oncology management in Kenya. Aligns with the Kenya National Cancer Control Strategy (2023–2027), Cancer Policy (2020–2030), KEMRI and County Cancer Registries. Supports multidisciplinary cancer care coordination, treatment protocols, and reporting using ICD-10 exclusively.

FHIR R4-based profile for diagnostic reports in oncology within the Kenyan healthcare context. Supports pathology, radiology, laboratory, and imaging reports aligned with:

• Kenya National Cancer Control Strategy (2023–2027)
• Kenya Cancer Policy (2020–2030)
• KEMRI cancer registries
• UHC and SHA reporting
• National staging and reporting standards
• County-based registry efforts (e.g., Nyandarua)

A profile for documenting oncology-related patient encounters in Kenya, aligned with the Kenya National Cancer Control Strategy (2023–2027), Kenya Cancer Policy (2020–2030), KEMRI registry data needs, and county-level cancer reporting workflows. Supports tracking of staging visits, diagnosis, treatment initiation, follow-ups, referrals, and palliative care within the Kenyan oncology ecosystem.

A FHIR R4-based Claim profile tailored for cancer-related health financing in Kenya. Supports SHA (Social Health Authority) reimbursement workflows and aligns with:

• Kenya National Cancer Control Strategy 2023–2027,
• Kenya Cancer Policy 2020–2030,
• KEMRI cancer reporting and financing infrastructure.

A Condition profile for structured oncology diagnosis documentation in Kenya, aligned with national cancer registry reporting and HL7® FHIR® standards.

Defines insurance and reimbursement details under SHA in Kenya, ensuring financial tracking and integration with NCCP Data Systems.

Defines pathology and laboratory reports for oncology patients in Kenya, integrating with DHIS2 and cancer registries.

FHIR Location profile tailored for cancer care delivery points in Kenya. Supports capture of facilities relevant to cancer diagnosis, treatment, and palliative care, aligned with national cancer control strategies and KEMRI cancer registry reporting.

Customized patient profile for oncology care in Kenya. This profile is part of the Oncology Implementation Guide for Kenya (Oncology-IG-Kenya) — a draft version (0.1.0) dated 2025-06-18. It models key patient elements aligned with Kenya’s national cancer registry, SHA (Smart Health Authority), DHIS2, and local care workflows. This guide demonstrates how HL7® FHIR® can be applied to transform cancer care, from screening to palliative support. It is a proof-of-concept created independently by a Kenyan digital health enthusiast, with no official endorsement, to inspire innovation using open health standards and locally relevant data modeling.

Defines structured cancer registry reporting format for Kenya, integrating with KEMRI Cancer Registry, Nairobi Cancer Registry, and DHIS2.

A FHIR R4-based SupplyRequest profile for cancer-specific medical supplies in Kenya. Supports drug procurement, diagnostic supply needs, and inventory tracking aligned with Kenya’s National Cancer Control Strategy (2023–2027), Kenya Cancer Policy (2020–2030), and practical needs of facilities reporting to the KEMRI registry and SHA ecosystem.

A profile for prescribing cancer-related medications in Kenya. Aligned with the Kenya National Cancer Control Strategy (2023–2027), Cancer Policy (2020–2030), and reporting needs of KEMRI and county cancer registries. Supports chemotherapy, palliative care, and anti-cancer drugs with ICD-10 and Kenya EMR terminology support.

Observation profile for cancer-related data elements in Kenya’s oncology care, supporting reporting, staging, diagnosis, and national registry alignment.

FHIR R4 profile for practitioners involved in oncology care in Kenya. Aligns with Kenya National Cancer Control Strategy (2023–2027), Kenya Cancer Policy (2020–2030), KEMRI Cancer Registry guidelines, and workforce tracking as emphasized in the KESHO and Nyandarua registry reports. Supports credentialing, role classification, and regional deployment for cancer care delivery.

FHIR R4 profile for defining roles of healthcare professionals involved in oncology services in Kenya. Supports assignment of oncology roles, facility affiliations, cancer services scope, and geographic deployment. Based on Kenya Cancer Policy (2020–2030), National Cancer Control Strategy (2023–2027), KEMRI cancer registry requirements, and KESHO conference findings.

Procedure profile tailored for oncology use in Kenya, supporting documentation of diagnostic, surgical, medical, radiotherapy, and palliative interventions. Aligned with Kenya National Cancer Control Strategy (2023–2027), Cancer Policy (2020–2030), KEMRI registry practices, and county-level reporting, using ICD-10 as the sole terminology for reporting procedures and conditions.

Structured response to oncology-related questionnaires used in Kenyan cancer screening, diagnosis, treatment, palliative care, and national registry reporting workflows. Aligns with Kenya’s National Cancer Control Strategy (2023–2027), Cancer Policy (2020–2030), KEMRI data elements, and county registry efforts.

A specialized ServiceRequest profile for oncology-related referrals, diagnostics, and procedures in Kenya. Informed by the Kenya National Cancer Control Strategy (2023–2027), Kenya Cancer Policy (2020–2030), and data practices from KEMRI and county cancer registries. Supports service ordering for biopsies, imaging, oncology specialist reviews, palliative care referrals, and tracking within a multidisciplinary care model.

Eastern Cooperative Oncology Group (ECOG) performance status.

Morphology code from ICD-O-3 to describe the tumor histology.

ICD-O-3 topography code to describe the primary site of the tumor.

Captures the highest level of formal education attained by a patient in Kenya. Supports cancer registry reporting, care planning, and socioeconomic assessment.

The current or most recent occupation of the patient.

Flag to indicate observation should be reported to the cancer registry.

Methods used to derive cancer observations such as histopathology, imaging, immunohistochemistry.

ValueSet for cancer stages commonly used in Kenya, e.g., Stage I–IV or TNM classifications.

Standard ECOG performance status codes used to assess patient functional status.

Eastern Cooperative Oncology Group (ECOG) Performance Status codes.

ICD-10 codes for the most common cancers in Kenya as per national strategy.

Tumor markers used in Kenyan oncology diagnostics.

Tumor markers commonly used in oncology diagnostics and monitoring in Kenya.

Confirmed malignant neoplasm of upper-inner quadrant of breast

Completed breast cancer screening response from a community health volunteer in Kisumu

Multimodal care plan for a 45-year-old female with Stage II breast cancer

Example oncology practitioner in Nairobi, Kenya

Urgent request for 15 biopsy needles for diagnostic services at KNH Oncology Centre

Request for 30 vials of Paclitaxel for breast cancer treatment at Nyandarua County Hospital

Claim for chemotherapy session reimbursement submitted to SHA by Nyandarua County Hospital

Chemotherapy prescription for a 45-year-old breast cancer patient in Nyandarua

First oncology clinic visit for staging and treatment planning

Kenyatta National Hospital’s Oncology Centre, providing national-level cancer diagnosis and specialized care.

A representative oncology center supporting diagnosis, treatment and follow-up for Nyandarua County, aligned with the National Cancer Registry.

Dr. Grace Wanjiku’s role as Consultant Oncologist at Kenyatta National Hospital

Pathology report for cervical biopsy indicating squamous cell carcinoma

Service request for breast ultrasound to evaluate palpable lump in patient

Surgical biopsy performed for suspected breast cancer

Reduce tumor size prior to surgery

This Implementation Guide demonstrates how HL7® FHIR® can be leveraged to enhance oncology care in Kenya. It includes standardized profiles such as OncologyKenyaPatient and OncologyObservationKenya, tailored search parameters, and extensions reflecting Kenya’s SHA and health system realities.

It is developed independently by a Kenyan health tech enthusiast to stimulate innovation, interoperability, and alignment with national cancer priorities.